Charlotte's Journey: Post-op Day Five

Tuesday, May 15, 2012

Post-op Day Five

Charlotte has done well through all of this so far. Last night was a little rough because of the IV:( The nurse was kind enough to run the meds through slowly and it seemed to help. Finally Charlotte is up and ready to troll around the hospital. She's funny, when we get her out of the room, she cries when we have to go back and she just begs us to take her "dis way" as she points in the opposite direction of the room. We got her out to the Atrium this morning, and she had so much fun. Our room overlooks the Atrium and there are kites and things hanging from the ceiling and she had been begging to go since we have been on 8D. Charlotte has a love for trains, so when she found the train table she didn't want to play with anything else.

I must admit it is a little challenging getting her around with a monitor attached to her with wires that hang. Finally I just decide to let it lay on the floor and let her drag it around, what could it hurt? Saves my back that's for sure!! I know with all the walking and playing it makes for a really tired little girl. Today has been a little concerning for Brian and I. Charlotte just looks weary, and her eyes are a little sunken in. Then she tells me she wants to potty and when I sit her on the potty she screams and cries:( I think she is constipated and I have asked for some miralax, I just hope it works quick. Charlotte hasn't had anything to eat most of the day, and that bothers me a little. Usually she eats one meal a day, but so far nothing. Brian and I took her to the cafeteria to see if she saw something she wanted for lunch........Pickles, dill pickles. I can't believe she has picked pickles for lunch, but hey if that's what she wants. It's Poop time in room 831:) I think if you could smell it all the way to Spartanburg if you tried!! I am so Thankful that she has pooped, she acts some better now! Supper time and we take her back, "chickalay" is what she has spotted this time. I don't believe it, but she ate two strips of chicken and drank a orange crush. We got great news that Charlotte's meds have been changed over to oral and the one dose of the second fluid medicine was all she needed, so no more IV, Thank you LORD!

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Heart Poem

It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus "I don't want to leave, I like it here, and I will miss you". He reassures the scared little angel that everything will be okay, and that he is just going for a visit. He is still not swayed on this idea. So Jesus kneels down, and says, "How about if you leave half of your heart here with me and take the other half with you, will that be okay?" The angel smiles and says, "I guess that will work". But the little angel is still a little scared. He asks,"Will I be okay with only half of my heart?" Jesus replies,"Of course you will, I have other angels there that will help out, and you will be fine." Then Jesus gives the angel more details about his plan. He says "When you are born, your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart". "Enjoy your time with your family, play and laugh everyday." "And when its time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves."

THE CHOSEN MOTHERS BY ERMA BOMBECK

Most women become mothers by accident, some by choice, a few by social pressure, and a couple by habit. Did you ever wonder how mothes of children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger. "Armstrog, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecilia. Rutledge, Carrie, twins, patron saint Gerard."

Finally, He passes a name to an angel and says, "Give her a child with cancer." The angel is curious. "Why this one God? She's so happy." "Exactly" smiles God, "Could I give a child with cancer a mother who does not know laughter? That would be cruel."

"But, does she have patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she will handle it." "I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has it's own world. She has to make it live in her world and that's not going to be easy."

"But, Lord, I don't think she believes in you. "No matter, I can fix that. This one is perfect. She has just enough selfishness." The angel gasps- "Selfishness? is that a virtue?"

God nods. "If she can't seperate herself from the child occasionally. she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take anything her child does for granted, She will never consider a single step ordinary. I will permit her to see clearly the things I see.... ignorance, cruelty, prejudice... and allow her to rise above them. "She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side." "And what about her patron saint?" asks the angel. His pen poised in mid-air. God smiles, "A mirror will suffice."