Charlotte's Journey: She Can Move:)

Saturday, March 26, 2011

She Can Move:)

Well it's official, Charlotte has figured out how to get up and be mobile somewhat. I honestly didn't think that she would be doing this already because she hasn't really seemed interested in getting around. I think that if Charlotte had her choice it would be for me to hold her and carry her everywhere! When Brian or I try to get her to stand up, she holds her legs up, straight out in front of her like she's sitting on air and will just hang as long as you hold her. We laugh at her because it's so funny, it's kinda like seeing who can hold out the longest. Seeing if we can hold her til she drops her legs, which NEVER happens, we usually give in because she's so heavy! So take a look, her she is with me and Maggie cheering her on!

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Heart Poem

It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus "I don't want to leave, I like it here, and I will miss you". He reassures the scared little angel that everything will be okay, and that he is just going for a visit. He is still not swayed on this idea. So Jesus kneels down, and says, "How about if you leave half of your heart here with me and take the other half with you, will that be okay?" The angel smiles and says, "I guess that will work". But the little angel is still a little scared. He asks,"Will I be okay with only half of my heart?" Jesus replies,"Of course you will, I have other angels there that will help out, and you will be fine." Then Jesus gives the angel more details about his plan. He says "When you are born, your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart". "Enjoy your time with your family, play and laugh everyday." "And when its time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves."

Ebstein’s Anomaly:
The tricuspid valve (t) [controling blood flow between the right atrium and the right ventricle] is abnormally formed. This tricuspid valve is long and sits deep in the right ventricle. It’s function is limited. Ebstein’s Anomaly often presents with pulmonary atresia and septal defects.

•Atrial Septal Defect
(ASD) [septum=wall between the chambers of the heart, atriums=top chambers of the heart] – holes in the inner walls of the heart allowing extra blood flow between the two upper chambers of the heart (atriums).

•Patent Ductus Arteriosus
(PDA) [patent=open, ductus=duct, arteriosus=artery] – an extra passageway between the pulmonary artery (carrying oxygen-poor blood from the heart to the lungs) and the aorta (carrying oxygen-rich blood from the heart to the body). The ductus arteriosus is open in a fetus. This allows extra bloodflow in the forming baby while it’s getting oxygen from Mom instead of its own lungs. The PDA normally closes around 10 days after birth.

•Pulmonary Valve Atresia
(atresia) [pulmonary=having to do with the lungs, atresia=without openings] a complete blockage of the pulmonary artery (which carries blood from the heart to the lungs) caused by a missing or fused-shut pulmonary valve.

THE CHOSEN MOTHERS BY ERMA BOMBECK

Most women become mothers by accident, some by choice, a few by social pressure, and a couple by habit. Did you ever wonder how mothes of children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger. "Armstrog, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecilia. Rutledge, Carrie, twins, patron saint Gerard."

Finally, He passes a name to an angel and says, "Give her a child with cancer." The angel is curious. "Why this one God? She's so happy." "Exactly" smiles God, "Could I give a child with cancer a mother who does not know laughter? That would be cruel."

"But, does she have patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she will handle it." "I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has it's own world. She has to make it live in her world and that's not going to be easy."

"But, Lord, I don't think she believes in you. "No matter, I can fix that. This one is perfect. She has just enough selfishness." The angel gasps- "Selfishness? is that a virtue?"

God nods. "If she can't seperate herself from the child occasionally. she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take anything her child does for granted, She will never consider a single step ordinary. I will permit her to see clearly the things I see.... ignorance, cruelty, prejudice... and allow her to rise above them. "She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side." "And what about her patron saint?" asks the angel. His pen poised in mid-air. God smiles, "A mirror will suffice."

Saturday, March 26, 2011

She Can Move:)

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